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SMS Foundation UK
Supporting SMS families for a positive future
Upcoming and past SMS Activities that take place either in-person or online.
On Saturday 26th July, we hosted our second family activity day – this time in the stunning surroundings of Avon Tyrrell in the New Forest. And let me tell you, the weather gods were smiling on us – not too hot, and not too cold. Which meant perfect conditions for all the outdoor fun we …
The SMS Foundation UK, in collaboration with CVI Now and PRISMS.org, is pleased to host a vital and informative webinar focused on Cerebral/Cortical Visual Impairment (CVI) — a condition that affects how the brain processes visual information.
Presented by experts Ali Mahady and Lacey Smith from CVI Now at the Perkins School for the Blind, this session is designed for parents and carers.
SMS Family Activity Day – Sat 20th September 2025 Lockerbie Manor Outdoor Activity Centre, Scotland We’re pleased to invite SMS families from across the UK to our next Family Activity Day at Lockerbie Manor Outdoor Activity Centre on Saturday 20th September 2025. This special event is a brilliant opportunity to meet other families living with …
We’re delighted to share that Jeans for Genes has awarded The SMS Foundation UK a very generous grant of £18,640. This funding will make a real difference to our community, helping us develop and expand our support for parents and carers of children and young people with Smith-Magenis syndrome. Thanks to this grant, we can …
What Every Parent and Carer Needs to Know Don’t forget to register for your space to a SEND education webinar hosted by the SMS Foundation UK. The webinar will be taking place next week (details below): 🗓 Thursday 12th June🕖 7:00pm – 8:30pm💻 Online via TEAMS All registered places will automatically receive a link to the recording of this webinar. The …
Date: Wednesday 4th December 2024Time: 19:00 – 20:00 Details A guide to navigating the process and pathways in the development of an Education Health and Care Plan (EHCP) for children and young people requiring additional support. Speaker Annette Benstead, Consultant Send Consultancy Service I have over 20 years experience in the field of Special Educational Needs …
Tuesday 29th October 2024 19:00 – 20:00 We invite you to join us for a webinar covering the topics of Power of Attorney and Deputyship, presented by Kerry Wagner at Irwin Mitchell. Webinar Overview This will provide a brief overview of the Mental Capacity Act 2005 and its general principles, what the Court of Protection …
We are pleased to share the outline schedule for our weekend away at the Mount Cook Activity Centre this August! As you will see, we have a wonderful blend of activities and information-sharing sessions planned for everyone. Information Sessions and Main Hall Access To ensure our weekend runs smoothly, information sessions will be held in …
For over a decade, the SMS Foundation UK has been uniting families living with Smith-Magenis Syndrome (SMS) through its biennial conferences, creating a space for shared journeys and invaluable information. However, after our milestone 30th-anniversary celebration in May 2022, held at Voco St John’s Hotel in Solihull, it became apparent that our beloved event has …
In the pursuit of a more inclusive and supportive future for individuals and families living with SMS, we recently conducted a community survey. Our objective was to gain a deeper understanding of the needs, challenges, and experiences of our community members. The results of this survey have unveiled startling statistics that emphasise the importance of …
Wednesday 14th September at 11 am and 7 pm Do you have a child starting primary school, or perhaps an adult about to leave school? Transitions are a scary place for parents and carers of people with special educational needs. We want to understand what the challenges are so we can support SMS families better. …
Please see below a selection of events and activities taking place over the next week in celebration of the International Smith-Magenis Syndrome Awareness Day on Wednesday 17th November!! We would also like to take this opportunity to thank everyone who has supported The SMS Foundation UK over the past year, please see our video message …
You are invited to join us for our Virtual Teddy Bears’ Picnic. We have lots of activities over the weekend where you can join us online. All links to zoom meetings will be shared on our Facebook and Twitter pages, and published (in this post) on our website ahead of the event. The links will …
300 picnic boxes are gradually making their way to all the people with Smith-Magenis syndrome on our UK membership list. The aim of the picnic boxes is to encourage as many people within our SMS community to join in our virtual event ‘Teddy Bears’ Picnic’ which will be taking place over the weekend of 1st …
In the lead-up to our next virtual event, the ‘Teddy Bears’ Picnic’ on the 1st and 2nd May, the SMS Foundation has recently sent out approximately 300 Easter cards to every person on our UK membership with Smith-Magenis syndrome. Also included with the Easter cards was a written personal invitation for the virtual picnic event. …
This week’s community Zoom drop-in chat is with Jayne Dainty of SOS Care Services. Jayne will be sharing her insights into meeting the needs of those with SMS from a care provider’s perspective? Drop-in for Tea at Two (2 pm) and/or Whine with Wine at Nine (9 pm) on Thursday 14 January 2021. Jayne and …
Saturday 5th May 2018 Conkers – Award winning attraction at the heart of the National Forest We are delighted to announce that we will be holding our AGM at Conkers in Derbyshire on Saturday 5th May. Entry to the attraction Conkers is from 10am – 4pm and will be free of charge to adult members …
We would like to say a huge “Thank You” to all those that helped to support last weeks Jeans for Genes Day and the Smith-Magenis Syndrome Foundation. The day was a huge success as schools and workplaces pulled on their jeans to raise awareness and funds for people with genetic disorders. Some of the schools …
Our one day conference on sleep in children with brain conditions will disseminate the findings of recent sleep research and and consider the implications for parents, carers and professionals. The conference will launch new information resources that the our Sleep Team, together with the Cerebra Centre for Neurodevelopmental Disorders – University of Birmingham, have developed …
Following the success of our last conference in 2015, we shall once again be returning to the St Johns Hotel in Solihull, from Fri 29th Apr – Mon 1st May 2017. The format will remain the same, with the main conference days as Saturday and Sunday. There will be entertainment on both Saturday and Sunday …
