We are a small charity that supports families living with Smith-Magenis syndrome (SMS)
It’s back again – our new Awareness Tea Towel Campaign for 2025!
This year’s theme is “Together we spread awareness, together we grow.”
To join in, get creative with your tea towel and share your most fun, exciting, or extreme photo – winner gets an SMS hoodie + £25 Amazon voucher. Competition ends 2nd November 2025.
Information and Support
Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS.
Popular Articles from our Information and Support Hub
EHCPs: A Guide for SMS Parents and Carers
Getting the right support for your child with Smith-Magenis syndrome can feel overwhelming — but you don’t have to face it alone. Our free downloadable guide combines legal insight, expert advice, and real-life experiences from families who’ve walked this path. Download your copy today and take the next step with confidence.
Ways to Support Us
Meet our inspiring group of individuals with SMS achieving remarkable things!
Share your journey and connect with other SMS families
The SMS International map was created by Salli Hunt and is a list of individuals who have been diagnosed with SMS across the world. The map is not affiliated with any of the official SMS organisations and is an independent piece of work that was established to help families find others living near them. Over 950 individuals with SMS across the world are now listed, if you would like to add a person with SMS please click the button below.
Our Partners and Supporters
